| Living with chronic illness |
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Barbara J Joseph OSF gives practical advice about how to come to terms with chronic illness and discover the grace that goes with the condition.
Serious personal illness brings about major changes in our lives that we need to acknowledge and deal with, changes that are insurmountable without faith. I did not want scleroderma (also known as systemic sclerosis). With its potential to deform – and even more frightening, to disable or kill – it was a scary disease. My plans and dreams didn't fit that kind of reality. Some of us accept the limitations of serious illness graciously, meekly, like lambs. We don't question; we don't protest. We simply modify our behaviour and continue on. Others – and I find myself in this group – are more like bucking broncos. We try desperately to throw off our limitations. We don't want them, and we're determined they will not ride our backs and keep us from business as usual. We don't have time for them, and besides, they don't fit in with our plans. Resisting the diagnosis Who ever heard of such a thing? How was I supposed to know when I was almost tired? Outwardly, I scoffed; inwardly, I struggled with this new information. I was making my illness worse. As impossible as following the doctor's advice seemed, I could think of no alternative. I would have to learn to recognise when my body was almost tired, and I would stop and rest. I did learn, and my body responded. The scleroderma went into spontaneous remission. While the lamb and the bronco react in very different ways, both can experience fear and confusion when a serious illness is diagnosed, putting an end to life as they have known and lived it. For both, faith is the only true weapon for combating such feelings. As Christians, we can contemplate and find strength in the life, death, and resurrection of Jesus, and we can follow his example, which leads us to new life. Looking back on my experience, I realise that the space I was in was as important as it was uncomfortable. For out of this space new beginnings sprouted as I worked through five steps that can make a significant difference in the way we view and live the rest of our lives. 1. Name your reality 2. Bring your reality before God Feeling very dead inside after naming my unhappy reality, I often sat with Jesus, pouring my heart out. I took his lesson seriously, and in the wee hours of the morning, with Jesus as my guide, I began to understand some things. In those hours I experienced his healing presence, not so much in my body as in my spirit. It was the healing I needed most, for Jesus always knows what we really need, even when we ourselves don't know. Jesus wants us to come to him in our brokenness; he wants to help us. Several years ago a friend gave me a small sign for my desk. It quoted Proverbs 3:5: "Trust in the Lord with all your heart, and do not rely on your own insight." Our understanding is limited by our human condition, but God sees the whole picture. Doesn't it make sense to place our trust in the One with the broader vision? 3. Let go of what was 4. Explore your options God gives each of us everything we need, including gifts to replace the ones we have lost. But we must be willing to stretch, to try new things, to take risks, and to trust. For myself and the women mentioned here, the health issues that have disrupted our lives and continue to plague us have proven to be stern but excellent teachers. We were forced to give up the identity we had known, an identity defined largely by what we could do, and take a long look at ourselves, deciding who we were going to be from that time on. Jesus - who knows all about dying and rising, who said over and over, "Do not be afraid, I am with you" - was with each one of us in that process. All we needed to do was to take his hand and walk with him. 5. Accept the challenge and move on to a healthier self It often seems that we give physical limitations power, beyond what is rightfully theirs. We are gifted people, and while it may appear that we have lost our gifts, God has stashed away inside us a whole assortment of other gifts just waiting to be discovered and released. Once we begin to uncover our hidden and therefore unused gifts, we will find our limitations replaced with avenues to life. Time, honest scrutiny, and sometimes great courage are needed here, but have no' fear, for God will not disappoint us. I have found that moving through this process has brought me to a truer, fuller identity. I realise that, at least in part, I was previously governed by what I perceived to be the expectations of others. When I could no longer meet those expectations and had no choice but to be my own person, I found I was much more at home with myself, as well as more open and honest in my relationships with God and with other people. Dealing with the physical challenges of my life has brought me to a better understanding of and a deeper trust in God's faithful love. Did I want these limitations? Absolutely not! Do I value the lessons I've learned and the growth that has come as a result to these struggles? Very, very much! Am I healthier now than ever before? Yes, in every way that really counts. I am the best I've ever been, through the wonderful and mysterious grace of God.
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